Support

Emotional Support for People with Alpha-gal Syndrome

Alpha-gal Emotional Support Team–a Project of Dori Svardal

For those of us that are newly diagnosed with Alpha-gal Syndrome, it can be horribly daunting. All those labels! What can I eat? What can’t I eat? What will it do to me? Why are people treating me like I’m crazy? Is there a doctor that knows more about this? There are so many overwhelming new changes, and we know it’s hard.

If you’re having an allergic reaction, you need to contact 911 immediately. But anyone who wants to talk to someone local about feeling overwhelmed, interactions with other people, how to protect themselves from cross-contaminations or any gripes or questions, can contact one of our Emotional Support Team. If you can’t find someone in your area, feel free to shoot us an email at alphagalhelp@gmail.com, and we can try to help you find someone. This is an overwhelming, crazy, frightening rollercoaster ride we’re all on. The more we can educate and support ourselves and others, the better we can all be.

Dori Svardal

Emotional Support Team

South Africa

SOUTH AFRICA

Rene Morcom
info@alphagal.co.za
Call or Whatsapp +27787739956

SWEDEN

Roselita Fabricius-Hansen
aurelroselle@gmail.com

United States

ALABAMA

Nannette Cain
simplify@afo.net

North Alabama

Valerie Lovitt
NorthALalphagal@gmail.com

ARKANSAS

NW Arkansas

Jennifer Burton
alphagalencouragers@gmail.com

Melissa Doherty
mldohert@yahoo.com

Rogers

Kelly Kinsella
kinsella.nutrition@gmail.com

DISTRICT OF COLUMBIA
GEORGIA

Chatsworth

Carol Zinzel-King
Crlk61@hotmail.com

KANSAS

Rachel McAfee Jones
jonesraa@yahoo.com

KENTUCKY

Kandace McWaters
KandaceMcWaters@gmail.com

LOUISIANA

Linda Perkins 
LAalphagal@gmail.com

MASSACHUSETTS/NEW ENGLAND

Beth Carrison
Beth@TBCUnited.org

MISSOURI

Joplin

Wendy Rich
wendy_rich@outlook.com

Knob Noster

Bethany Welch
Welchpeople@gmail.com

Ozark County

Annia Contreras
AlphaGalPassion@gmail.com

Springfield and Southwest Missouri

Dori Svardal
thecouponamazon@gmail.com

NEW HAMPSHIRE/NEW ENGLAND
NEW JERSEY

Long Island-Suffolk County

Peggy Mendenhall
PeggyS1239@gmail.com

NEW JERSEY

Long Island-Suffolk County

Peggy Mendenhall
PeggyS1239@gmail.com 

NORTH CAROLINA

Central NC

Tami McGraw
alphagaltami@gmail.com

Alamance County

Crystal Norton
alamanceagshelp@yahoo.com 

Chapel Hill

Christopher Rose
christopher.barry.rose@gmail.com
 

TENNESSEE

Dickson

Cassie Ponder
alphagalmama@gmail.com

VIRGINIA

Christianburg

Candice Matthis
Bloomingkitchen@gmail.com

Richmond

Julie Smith LeSueur
Jlesueur711@gmail.com

Roanoke

Heather Hamlin O’Bryan
Reap.and.repeat@gmail.com

 

AGS Facebook Support Groups: a Project of Melissa Davison Doherty and Jennifer Burton

You are not alone! Thousands of us have alpha-gal syndrome! We gather in Facebook groups to support each other and help each other find doctors and dentists, foods we can eat, and personal care products we can use. Since so little is known about our illness, we talk about our  symptoms and how we manage them, how to talk to doctors about AGS, and the medicines, vaccines, and other medical issues we need to discuss with them. We share our stories, our disappointments, and our successes. Come join us!

Alpha-gal Syndrome Facebook Information and Support Groups

THE MAIN AGS SUPPORT GROUP
Alpha Gal Support Non-public https://www.facebook.com/groups/alphagalsupport/
THE MAIN AGS FOOD GROUP
The AlphaGal Kitchen https://www.facebook.com/groups/TheAlphaGalKitchen/
OTHER GENERAL INFORMATION AND SUPPORT GROUPS
A Ticked Alpha-GAL https://www.facebook.com/groups/876258672711914/
Alpha Gal Allergy Uncensored https://www.facebook.com/groups/1851131688499183/
Alpha-Gal https://www.facebook.com/Alphagalaeon/
Alpha-Gal & the Lone Star Tick https://www.facebook.com/allergista/
Alpha-Gal Allergy – Dr Luis Matos – MD MBA https://www.facebook.com/groups/alphagalallergy/
Alpha-Gal Allergy Awareness https://www.facebook.com/alpha.gal/
Alpha-gal Syndrome https://www.facebook.com/groups/alphagalsyndrome/
Alpha-Gal, On The Bright Side https://www.facebook.com/alphagalstinks/
Our Journey With Alpha Gal https://www.facebook.com/groups/1731176053822199/
Red Meat Allergy Patients Group https://www.facebook.com/groups/485244261555556/
The {NEW} ALPHA GAL SUPPORT GROUP https://www.facebook.com/groups/1172307906123999/
TBCU https://www.facebook.com/TBCUnited/
FOOD AND COOKING
Alpha-Gal Friendly Food https://www.facebook.com/groups/Alphagalfood/
The ALPHA-Gal Chef, 30 Min Or Less (Recipes) https://www.facebook.com/groups/284793758785625/
The AlphaGal Kitchen https://www.facebook.com/groups/TheAlphaGalKitchen/
Ticked Alpha Gal’s Tastebuds/Recipe’s https://www.facebook.com/groups/357224914889470/
Alpha Gal Instant Pot Recipes https://www.facebook.com/groups/561162041358512/
FAMILIES AND KIDS
Alpha-Gal Allergy Support for Families https://www.facebook.com/groups/alphagalfamilies/
Alpha-gal Kids https://www.facebook.com/groups/122577368505283/
WOMEN ONLY
AlphaGal Girls Only https://www.facebook.com/groups/425181948209381/
SINGLES
Alpha-Gal Singles Page https://www.facebook.com/groups/alphagalsingles/
FOR PEOPLE WITH AGS AND OTHER HEALTH ISSUES
Diabetics Living with Alpha-Gal https://www.facebook.com/groups/229823987684331/
Ticked Off Mast Cells https://www.facebook.com/TICKEDOFFMASTCELLS/
OTHER
Alpha-gal: Offgridders, Preppers & Homesteaders https://www.facebook.com/groups/1138511526252673/
U.S. REGIONAL SUPPORT AND INFORMATION GROUPS
Alpha Gal Arkansas https://www.facebook.com/groups/173388296585090/
Alpha Gal Encouragers – NW Arkansas https://www.facebook.com/groups/AlphaGalEncouragersNWA/
Alpha Gal Farmville Virginia Support https://www.facebook.com/groups/336813577226332/
Alpha Gal Information in Southwest Missouri https://www.facebook.com/groups/383111262149358/
Alpha Gal Meat Allergy Kentucky Forum https://www.facebook.com/groups/556468041133358/
Alpha Gal of Delaware https://www.facebook.com/ALPHAGALOFDELAWARE/
Alpha Gal of Maryland https://www.facebook.com/AlphagalDebi/?fref=gs&dti=243779702954810&hc_location=group_dialog
Alpha Gal of NWA https://www.facebook.com/groups/1144648545664463/
Alpha Gal Support – Kansas https://www.facebook.com/groups/771783323029863/
Alpha Gal Support Group Of Muhlenberg County Ky https://www.facebook.com/groups/1815493071830239/
Alpha Gal Support of Middle Tennessee https://www.facebook.com/groups/358103977895088/
Alpha Gal Support of Western Kentucky https://www.facebook.com/groups/718794698317193/
Alpha Gal Support, Chatham and Orange County, NC https://www.facebook.com/groups/1038587169522212/
Alpha-gal Syndrome DC https://www.facebook.com/groups/656773651510968/
Alpha Gal VA https://www.facebook.com/groups/509789969381212/?ref=group_browse_new
Alpha-Gal Awareness in Missouri https://www.facebook.com/groups/919930748085469/
Alpha-gal Awareness OBX https://www.facebook.com/groups/2062160037442580/
Alpha-Gal Illinois and Surrounding Areas https://www.facebook.com/groups/696372710765132/
Alpha-gal in Oklahoma https://www.facebook.com/groups/162698044186040/
Alpha-Gal Support – New England https://www.facebook.com/groups/945417298939582/
Alpha-Gal Support Kentucky https://www.facebook.com/groups/243779702954810/
Grayson County Kentucky Alpha Gal Group https://www.facebook.com/groups/2029778273915444/
Joplin Alpha Gal Awareness https://www.facebook.com/groups/738484166593067/
Tennessee Alpha Gal Support https://www.facebook.com/groups/2354407324773668/
TiC NC – Tick-Borne Council of North Carolina, Inc. https://www.facebook.com/TICNC/
INTERNATIONAL SUPPORT AND INFORMATION GROUPS
AlphaGal & Tick Allergy – Australia https://www.facebook.com/groups/516819061808417/
Alpha-Gal Syndrome Support South Africa https://www.facebook.com/groups/1155723147809906/
AlphGal safe Pharmaceuticals: Australia https://www.facebook.com/groups/1166574100046466/
Köttallergi https://www.facebook.com/groups/424931037605543/