Facebook Support Groups

Support Groups for People with Alpha-gal Syndrome

AGS Facebook Support Groups

Created by Melissa Davison Doherty and Jennifer Burton, edited and maintained by Sharon Forsyth

You are not alone! Thousands of us have alpha-gal syndrome! We gather in Facebook groups to support each other and help each other find doctors and dentists, foods we can eat, and personal care products we can use. Since so little is known about our illness, we talk about our  symptoms and how we manage them, how to talk to doctors about AGS, and the medicines, vaccines, and other medical issues we need to discuss with them. We share our stories, our disappointments, and our successes. Come join us!

Inclusion of groups on this list does not suggest endorsement of information shared in them. Beware of misinformation in Facebook groups, often aggressively promoted by people who share research papers in order to lend credibility to their posts, but who rarely read them or are capable of understanding them. Note that some groups allow promotion of unvalidated medical treatments and other dangerous misinformation. Take what you read in Facebook groups with a grain of salt!

Alpha-gal Syndrome Facebook Information and Support Groups

Alpha-gal Information FB Groups

Alpha-gal Information: Evidence-Based Support
A support group for people with alpha-gal syndrome who want fact-checked, evidence-based information. 

Alpha-gal Lifestyle
Lifestyle tips, foods, personal care products and more for people with alpha-gal syndrome. Companion group to the Alpha-gal Lifestyle page and website (coming soon).

Alpha-gal Syndrome Awareness Campaign
Group for people who want to raise awareness about AGS and volunteer for project to support the alpha-gal community.

Alpha-gal Syndrome Research Supporters
Group for people who want to help fundraise for AGS research.

Alpha-gal Information FB Pages and Twitter Accounts

Alpha-gal Information
General AGS information and news. Twitter account is @alphagal_info.

Alpha-gal Syndrome Research
Alpha-gal Syndrome Research tracks and shares research on alpha-gal syndrome. Twitter account is @AlphaGal_RES.

Alpha-gal Lifestyle
Lifestyle tips, foods, personal care products and more for people with alpha-gal syndrome.

Airborne Alpha-gal Reactions

Airborne Alpha-gal Reaction Support Group
For people who react to airborne alpha-gal, such as bioaerosols generated by cooking meat.

Management of AGS

Xolair (Omalizumab) Discussion Group for Alpha-gal Patients

Food/Cooking

This is a selection of the most active and helpful alpha-gal related food and cooking groups.

The AlphaGal Kitchen
Largest AGS food-related group. A place for those that are mastering their alpha gal allergy to share their alpha gal kitchen recipes and experiences.

Alpha-gal on a Dime
A place to share money saving tips, recipes, hacks, and anything that makes living with alpha-gal easier. Popular group with lots of recipes.

alpha-gal NOW
Demystifying food labeling and providing deeper insight into the food industry. Run by a foodservice director with deep knowledge of the food industry. Great recipes and meal ideas.

Fins and Feathers – Alpha-Gal Friendly Food
A place to share pics and recipes that are Alpha-Gal friendly and alternatives to beef and pork.

Alpha-gal Meal Planning Hub
This is a group for people with Alpha-gal syndrome to share their meal ideas, whether it’s a week’s worth or just one meal idea. We share recipes and help each other.

Vegan Gals (& Guys!)
All alpha gal safe, all vegan! Let’s share recipes, products, anything as long as it’s vegan and alpha gal safe

Families/Kids

Alpha Gal for kids

Women Only

Alphagal GIRLS ONLY
Women only. For women to speak openly regarding female alpha-gal issues without the men.

Men Only

Alpha-Gal Men’s Hangout
Guy’s group.

Mental Health/Self-Care

TAG Team: Alpha-gal Resilience
Mental health, self-care tips.

AGS Plus Other Health Challenges

Life with Alpha-gal and Cancer

Diabetics Living with Alpha-gal

GF Alpha Gal Recipes and Products 

Gluten Free Alpha Gals (and Guys)

Special Interest Groups

Pets and Alpha Gal Syndrome

alpha-gal Educators

We Are Alpha-letes: Living Actively w/AGS

Alpha-gal Artists

Alpha Gal Canna Club

Alpha-gal: Offgridders, Preppers & Homesteaders

Alpha-Gal, On the Bright Side

Alpha-Gal Singles Page

Black People with Alpha Gal Syndrome

Traveling with Alpha-Gal

Alpha-Gal friendly Restaurants and Favorite Recipes Group

 

International Facebook Support Groups and Pages

U.S. Regional Facebook Support Groups

All the information on alphagalinformation.org is provided in good faith, but we, the creators and authors of the Alpha-gal Information website offer no representation or warranty, explicit or  implied, of the accuracy, adequacy, validity, reliability, availability, or completeness of any information on this site. Under no circumstances should we have any liability for any loss or damage incurred by you as a result of relying on information provided here. We are not physicians or medical professionals, researchers, or experts of any kind. Information provided in this website may contain errors and should be confirmed by a physician. Information provided here is not medical advice. It should not be relied upon for decisions about diagnosis, treatment, diet, food choice, nutrition, or any other health or medical decisions. For advice about health or medical decisions including, but not limited to, diagnosis, treatment, diet, and health care consult a physician.
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DISCLAIMER:

 All the information on alphagalinformation.org (“here” “this site”) is provided in good faith, but we, the creators and authors of the alphagalinformation.org website (“we” “us” or “our”) offer no representation or warranty, explicit or  implied, of the accuracy, adequacy, validity, reliability, availability, or completeness of any information on this site. Under no circumstances should we have any liability for any loss or damage incurred by you as a result of relying on information provided here. The user assumes all risk of using information provided here.

We are not physicians or medical professionals, medical or scientific researchers, or experts of any kind. We are laymen with alpha-gal syndrome with no medical or scientific expertise. The information provided by us on alphagalinformation.org  is provided for general informational purposes only. It may contain errors and should be confirmed by a physician. Information provided here is not medical advice and is not a substitute for the advice of a physician or other medical professional. It should not be relied upon for decisions about diagnosis, treatment, diet, food choice, nutrition, or any other health or medical decisions. For advice about making medical and health-related decisions, consult a physician.  

Alphagalinformation.org may contain links to other websites, embedded information from other websites, links to apps, or other sources of information belonging to or originating with third parties. We do not investigate, monitor, or evaluate information provided by external links or embedded third party features for accuracy, adequacy, validity, reliability, availability, or completeness. We do not warrant, endorse, or guarantee the accuracy of such information. We will not be a party to or in any way responsible for monitoring any transaction between you and any third-party provider of products, services, or information. Under no circumstances should we have any liability for any loss or damage incurred by you as a result of relying on third party information provided here. The user assumes all risk of using information provided here.

No mention of any product or service on this website constitutes an endorsement. We do not endorse any products or services mentioned here. We cannot and do not guarantee that any product or services mentioned here will not harm you, anybody with alpha-gal syndrome, or any other person. We will not be a party to or in any way responsible for monitoring any transaction between you and any third-party provider of products or services. Under no circumstances should we have any liability for any loss or damage incurred by you as a result of the use of third-party products or services. The user assumes all risk of using products and services mentioned or named on alphagalinformation.org or any third party mentioned or connected to through external links or embedded features.

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