Facebook Support Groups

Support Groups for People with Alpha-gal Syndrome

AGS Facebook Support Groups

Created by Melissa Davison Doherty and Jennifer Burton, edited and maintained by Sharon Forsyth

You are not alone! Thousands of us have alpha-gal syndrome! We gather in Facebook groups to support each other and help each other find doctors and dentists, foods we can eat, and personal care products we can use. Since so little is known about our illness, we talk about our symptoms and how we manage them, how to talk to doctors about AGS, and the medicines, vaccines, and other medical issues we need to discuss with them. We share our stories, our disappointments, and our successes. Come join us!

Inclusion of groups on this list does not suggest endorsement of information shared in them. Beware of misinformation in Facebook groups, often aggressively promoted by people who share research papers in order to lend credibility to their posts, but who rarely read them or are capable of understanding them. Note that some groups allow promotion of unvalidated medical treatments and other dangerous misinformation. Take what you read in Facebook groups with a grain of salt!

General support and special interests

International support groups

U.S. regional support groups

Alpha-gal Syndrome Facebook Information and Support Groups

Alpha-gal Information FB Groups

Alpha-gal Information: Evidence-Based Support
A support group for people with alpha-gal syndrome who want fact-checked, evidence-based information.

Alpha-gal Lifestyle
Lifestyle tips, foods, personal care products and more for people with alpha-gal syndrome. Companion group to the Alpha-gal Lifestyle page and website (coming soon).

Alpha-gal Syndrome Awareness Campaign
Group for people who want to raise awareness about AGS and volunteer for project to support the alpha-gal community.

Alpha-gal Syndrome Research Supporters
Group for people who want to help fundraise for AGS research.

Alpha-gal Information FB Pages and Twitter Accounts

Alpha-gal Information
General AGS information and news. Twitter account is @alphagal_info.

Alpha-gal Syndrome Research
Alpha-gal Syndrome Research tracks and shares research on alpha-gal syndrome. Twitter account is @AlphaGal_RES.

Alpha-gal Lifestyle
Lifestyle tips, foods, personal care products and more for people with alpha-gal syndrome.

Airborne Alpha-gal Reactions

Airborne Alpha-gal Reaction Support Group
For people who react to airborne alpha-gal, such as bioaerosols generated by cooking meat.

Food/Cooking

This is a selection of the most active and helpful alpha-gal related food and cooking groups.

The AlphaGal Kitchen
Largest AGS food-related group. A place for those that are mastering their alpha gal allergy to share their alpha gal kitchen recipes and experiences.

Alpha-gal on a Dime
A place to share money saving tips, recipes, hacks, and anything that makes living with alpha-gal easier. Popular group with lots of recipes.

alpha-gal NOW
Demystifying food labeling and providing deeper insight into the food industry. Run by a foodservice director with deep knowledge of the food industry. Great recipes and meal ideas.

Fins and Feathers – Alpha-Gal Friendly Food
A place to share pics and recipes that are Alpha-Gal friendly and alternatives to beef and pork.

Families/Kids

Alpha Gal for kids

Women Only

Alphagal GIRLS ONLY
Women only. For women to speak openly regarding female alpha-gal issues without the men.

Men Only

Alpha-Gal Men’s Hangout
Guy’s group.

Mental Health/Self-Care

TAG Team: Alpha-gal Resilience
Mental health, self-care tips.

AGS Plus Other Health Challenges

Life with Alpha-gal and Cancer

Diabetics Living with Alpha-gal

GF Alpha Gal Recipes and Products

Gluten Free Alpha Gals (and Guys)

Special Interest Groups

alpha-gal Educators

We Are Alpha-letes: Living Actively w/AGS

Alpha-gal Artists

Alpha Gal Canna Club

Alpha-gal: Offgridders, Preppers & Homesteaders

Alpha-Gal, On the Bright Side

Alpha-Gal Singles Page

Black People with Alpha Gal Syndrome

Traveling with Alpha-Gal

Alpha-Gal friendly Restaurants and Favorite Recipes Group

International Facebook Support Groups and Pages

Name of group	Country	No. of members	Admins	Link	Geographic focus and description
Mammalian Meat Allergy Tamborine Mountain	Australia	31	Kim Lola Ruby	https://www.facebook.com/groups/1014797629339943/about	Tamborine Mountain, Australian
AlphaGal & Tick Allergy - Australia	Australia	423	Alpha-Gal Allergy and Tick-Borne Diseases Research, Elizabeth Rowley	https://www.facebook.com/groups/516819061808417	Australia. A place to talk about Alpha-Gal (Mammalian Meat Allergy) & Tick Allergy in Australia
AlphGal safe Pharmaceuticals: Australia	Australia	339	Margaret Fletcher	https://www.facebook.com/groups/1166574100046466/	Australia. No description available
Alpha-gal Deutschland	Germany	8	Nelly Pfister	https://www.facebook.com/groups/720169261924126	Deuschland (Germany). Diese Gruppe soll zum Austausch aller deutsch-sprachigen Alpha-Gal Betroffenen und Angehörigen dienen.
Alpha-gal (Mammalian Meat Allergy) New Zealand	New Zealand	4	Anna Marie	https://www.facebook.com/groups/230008864688860	New Zealand. Discussion and support group for people who have alpha-gal allergy who live in New Zealand.
Alpha-Gal Syndrome Support South Africa	South Africa	151	Rene Morcom, Mark Morcom	https://www.facebook.com/groups/1155723147809906/	South Africa. Support for those affected by Alpha-Gal Syndrome in South Africa.
Köttallergi (Scandanavia)	Sweden	690	Malin Lundén Schmid, Kidde Rydholm, Wilma Folkebrant	https://www.facebook.com/groups/424931037605543/	Scandanavia. En grupp för oss som har allergi mot kolhydraten alpha-gal i däggdjurskött. Den här allergin är en följd av fästingbett, men är ingen fästingburen sjuktom. Det är våra egna kroppar som reagerar med en allergisk reaktion. Här kan vi dela med oss, supportera och fråga varandra om allt som relaterar till detta
UK Alpha Gal Support	United Kingdom	48	Louise Coldrick, Jack Coldrick	https://www.facebook.com/groups/277150870133268	United Kingdom. This group is a mutual support group for people living in the UK who have Alpha Gal allergy.
Föreningen för köttallergi / alfa-galsyndrom (page)	Sverige/Sweden	NA	NA	https://www.facebook.com/foreningen.kottallergi.alfagalsyndrom	Sverige/Sweden. Alfa-galsyndrom är en allergi mot en kolhydrat, galaktos-alfa-1,3-galaktos (alfa-gal), som finns i
Att leva med alfa-gal	Suomi/Finland	NA	NA	https://www.facebook.com/alfagalallergikern	Finland. En blogg om att ha s.k. köttallergi och lära sig leva med och utan sackariden alfa-gal. Allergisk
UK Alpha Gal MMA support group	UK	16	Will Fawcett	https://www.facebook.com/groups/646060649198350	For people in the UK looking to share information and support about their alpha gal allergy
Alpha-gal allergy support for Canadians	Canada	New group!	Em Seb	https://www.facebook.com/groups/166066042468082	As many Canadians suffering with this may know, we are limited in our research and resources for alpha gal in Canada. This is a group for Canadians to share their experiences, advice and information about the resources and drs in Canada available to assist with this potentially debilitating allergy.
Name of group	Country	No. of members	Admins	Link	Geographic focus and description

U.S. Regional Facebook Support Groups

Name of group	State	# of members	Admins	Link	Geographic focus and description
Alpha Gal Encouragers – NW Arkansas	AR	1,956	Jennifer Burton, Eric Burton, Lori Lynn, TJ Bruce	https://www.facebook.com/groups/AlphaGalEncouragersNWA/	NW Arkansas. We are a Non-Profit Advocacy, Support and Outreach group with a Christian perspective & vision that serves those diagnosed with Alpha Gal Syndrome, their families, friends and advocates.
Alpha Gal Support of Middle Tennessee	TN	726	Cassie Ponder	https://www.facebook.com/groups/358103977895088/	Middle Tennessee. This group is for anyone living daily with the Alpha galactose 1,3 allergy or have loved ones with the allergy.
Alpha-Gal Awareness in Missouri	MO	712	Linda Baker House	https://www.facebook.com/groups/919930748085469/	Missouri. Alpha-Gal Awareness in Missouri has been created to share awareness of alpha-gal allergy caused by tick bites in communities in the state of Missouri.
Alpha Gal VA	VA	632	Julie Smith LeSueur, Alpha Gal Virginia	https://www.facebook.com/groups/509789969381212/?ref=group_browse_new	Virginia. No description available.
Alpha-Gal Support Kentucky	KY	627	Kristi Sexton Honaker	https://www.facebook.com/groups/243779702954810/	Kentucky. I’d love for this to be a space to share some recipes, tips and tricks, new research findings, and to ask questions and share experiences.
Alpha Gal Information in Southwest Missouri (not affiliated with Alpha-gal Information website)	MO	552	Princess Fab, Jennifer Burton	https://www.facebook.com/groups/383111262149358/	Southwest MO. This is an informational group page for people with Alpha-Gal or loved ones with Alpha-Gal that have interests in the Southwest Missouri area. This page is not limited to people that live specifically in the region
Alpha Gal Arkansas	AR	521	Chip Doss, Aliza Yarden-Cummings	https://www.facebook.com/groups/173388296585090/	Arkansas. For people who suffer from Alpha Gal Meat Allergy in the state of Arkansas.
Alpha Gal Meat Allergy Kentucky Forum	KY	403	Selena Silver	https://www.facebook.com/groups/556468041133358/	Kentucky. This group is for anyone who has Alpha Gal meat allergy and their friends and family to be able to share information, frustrations and successes in living with Alpha Gal allergy specifically in Kentucky but other areas are welcome too!
Alpha-gal in Oklahoma	OK	309	Sarah Foster	https://www.facebook.com/groups/162698044186040/	Oklahoma. No description available.
Alpha-gal Allergy NE OK	OK	278	Kristie Cornish, Shelly Ann Vail Boston	https://www.facebook.com/groups/601355087324596	Northeast Oklahoma. This group was created to spread awareness about alpha gal allergy and give support to those in Northeast Oklahoma.
Joplin Alpha Gal Awareness	AR	229	Tereasa Freeman, Wendy Rich	https://www.facebook.com/groups/738484166593067/	Joplin, Arkansas. Alpha Galactose- support and education.
Alpha Gal Support, Chatham and Orange County, NC	NC	203	Tami Boyter McGraw	https://www.facebook.com/groups/1038587169522212/	Central North Carolina. Central North Carolina residents diagnosed with Alpha Gal.
Alpha Gal of NWA	AR	197	Joe Wilson	https://www.facebook.com/groups/1144648545664463/	NW Arkansas
Alpha-Gal St. Louis	MO	156	Julie Alexander Marshall	https://www.facebook.com/groups/107439941270162/members	St Louis, MO. This group is for individuals who live in the St, Louis area who have Alpha-Gal Syndrome. This is a place to connect and support each other.
Alpha Gal Support Roanoke and Blue Ridge	VA	152	Nicole Cooper, Cortney McCord, Heather Hamlin O'Bryan	https://www.facebook.com/groups/alphagalroanoke	This a group for folks and families living with Alpha-Gal Syndrome and living in the Roanoke and surrounding Blue Ridge Valley. We can share local restaurants, resources and events that are AGS-friendly!
Alpha Gal Support – Kansas	KS	144	Nancy Peterson Bradfield	https://www.facebook.com/groups/771783323029863/	Kansas. No description available.
AGNJ – Alpha Gal Syndrome resources in NJ	NJ	116	Erin Leigh, Jim Green	https://www.facebook.com/groups/454143436450800	New Jersey. A private forum for AGers in and near NJ to discuss local resources from local doctors to AG safe dining and everything in between.
Alpha Gal Farmville Virginia Support	VA	113	Audrey Sullivan	https://www.facebook.com/groups/336813577226332/	Farmville, VA. The support group is intended to keep folks informed and to exchange ideas and information. Support Group meetings will be held at 104 N. Main St. (Red Door 104) the last Wednesday of each month at 6:15 pm. Bring notebooks.
Grayson County Kentucky Alpha Gal Group	KY	105	Janet Kessinger, Tara Sallee	https://www.facebook.com/groups/2029778273915444/	Grayson County, KY. This group is for Grayson County Ky people who have the Alpha Gal allergy to share their experiences, know what foods/products to avoid, and learn from each other. All family and friends of Alpha Galers are welcome to join in order to help us navigate this horrible allerg
Alpha-Gal Illinois and Surrounding Areas	IL	91	Holly Tuten	https://www.facebook.com/groups/696372710765132/	Illinois. This is a group where people who are interested in the tick-borne Alpha-Gal mammal meat allergy can ask questions, get support, and learn. This group is primarily focused on people in or near Illinois. One purpose of this group is to gain a better understanding of the incidence of Alpha-Gal in Illinois.
Alpha-gal of Southern Maryland	MD	91	Rosie Wynne-Meador	https://www.facebook.com/groups/433974621928079	Southern Maryland. A group for those affected by Alpha-gal Syndrome who live in Southern Maryland.
Alpha-Gal Allergy in Hart, Barren and Edmonson Counties	KY	90	Chelsea Ballard	https://www.facebook.com/groups/4129896207032621	Hart, Barren and Edmonson Counties, Kentucky.A support group for people who have been confirmed or suspect they have alpha-gal allergy from a lone star tick.
Alpha-Gal Support – New England	MA (New England)	74	Beth Carrison	https://www.facebook.com/groups/945417298939582/	New England. This group is “OPEN” to enable information and post sharing and supported by TBC United.
Alpha-gal Awareness OBX	NC	66	Vanessa R Mickey	https://www.facebook.com/groups/2062160037442580/	Outer Banks, NC. No description available.
Alpha Gal Support of Western Kentucky	KY	65	Jeannie Cobb Moran	https://www.facebook.com/groups/718794698317193/	Western Kentucky. This is a support group for people diagnosed with alpha-gal. This is a place to share information and experiences.
Central Arkansas Alpha-gal Warriors	AR	55	Alicia Smith, Nicole Smith	https://www.facebook.com/groups/2422108344705127	Central Arkansas. A place for those with AG to support and connect with each other. Plans to actually have in person meet ups will be made here.
Alpha Gal support group for Mid Missouri	MO	47	Dalton Giesler, Caitlyn Giesler, Lindsey Wilson	https://www.facebook.com/groups/1280481896015125	Rolla area, Mid-Missouri. This group is for the folks from Rolla and surrounding mid Missouri areas to connect and share information about their experiences with AGS and local stores, restaurants, and treatments that accommodate AGS.
Alpha Gal Awareness - Alamance and surrounding counties	NC	43	Kirsten McBride	https://www.facebook.com/groups/510401753981235	Alamance County, NC.
Alpha-gal Metro DC (DC and nearby MD and VA)	DC (& nearby MD,VA)	37	Sharon Pitcairn Forsyth, Alpha-gal Information	https://www.facebook.com/groups/alphagaldc	Metropolitan DC. (District of Columbia and nearby MD and VA) A group for people with alpha-gal syndrome (AGS) who live in the DC metropolitan area. Focus of the group is support for people in the DC area who have AGS, awareness raising, and advocacy.
Mississippi Folks With Alpha Gal	MS	33	Princess Fab	https://www.facebook.com/groups/358210648564647	Mississippi. For people in Mississippi that have Alpha Gal or are supporting their family members who have Alpha Gal.
Long Islanders with Alpha-gal	NY	31	Emily Smith	https://www.facebook.com/groups/325554029734640/members	Long Island, NY. This group is meant to create a platform to share support, experiences, and resources for those of us navigating life with alpha-gal on Long Island.
AlphaGal West Tennessee support and meet	TN	30	Christine Gofmanas	https://www.facebook.com/groups/1265543007185465	West TN. This group is for AlphaGal suffers of West Tennessee. A place to share needs, wants and frustrations.
DelMarVa Alpha-Gal Group	DE	29	Deaneé Johnson	https://www.facebook.com/groups/216535035806350/members	DelMarVa Peninsula. Just a group of people who live in the Delaware, Maryland, and Virginia area who are trying to navigate this thing called Alpha-Gal.
Clay County Alpha-Gal Support	KY	28	Tammy Marcum Smith, Jenna Michon	https://www.facebook.com/groups/772188083342820/discussion/preview	Clay County, KY.
Alpha Gal Support-Oklahoma	OK	28	Frank Pardus	https://www.facebook.com/groups/688590982401804	Oklahoma. A support group for individuals and family members in the state of Oklahoma affected by Alpha Gal Syndrome.
AlphaGal Middle Peninsula VA	VA	28	Karen Lloyd, Debbie Wishmeyer Frayser	https://www.facebook.com/groups/1476481132845838/	Middle Peninsula VA. A support group for those affected by Alpha-Gal.
MN and WI Alpha-Gal	MN	26	Suzanne Keithley Myers	https://www.facebook.com/groups/1056770431123274/	Minnesota and Wisconsin
SML area Alpha Gal support group (Smith Mountain Lake)	VA	26	Tammy Myers Pence	https://www.facebook.com/groups/639421117424386	Smith Mountain Lake, VA. This group is for anyone with Alpha Gal or friends/family of someone who is suffering with this tick-born allergy.
SEK Alpha Gal	KS	24	Gina Ann Cagle	https://www.facebook.com/groups/540006300917248	Southeast Kansas. A place to share general information regarding the AG allergy and connect with other locals. Feel free to share AG friendly restaurants in the area, as well as health care professionals who are familiar with the allergy.
Alpha Gal, North Carolina	NC	22	Vickie Garner	https://www.facebook.com/groups/270765483298728	North Carolina. North Carolinians with Alpha Gal sharing experiences and information about Alpha Gal.
Alpha-gal Syndrome Support Southeast TN	TN	21	Bruce Summers, Janet Firriolo	https://www.facebook.com/groups/141515779865064	Southeast TN. A place to talk about and share thoughts, concerns, treatment and food alternatives for sufferers of Alpha-gal allergies.
Alpha-gal in Somerset	KY	11	Stephanie Price Baker, Stacey Price Ferrell	https://www.facebook.com/groups/3339723492781364	Somerset, KY.This group will at times share information from the other pages but it will also focus on local things. Here, we can share items we find locally, questions and success about local restaurants, etc
The Alpha Gal Cafe - Deltaville Version!	VA	11	Copeland Casati	https://www.facebook.com/groups/alphagals	Deltaville, VA. Group for the the Alpha Gals’ Alpha Gal Cafe
Alpha Gals & Guys Southern Illinois	IL	10	Bonnie Burton	https://www.facebook.com/groups/770538897281556	Southern Illinois. No description available
Alpha Gal Mammal Allergy In Dawson Springs, Ky. (Hopkins County)	KY	6	Sharon Ramsey Russell	https://www.facebook.com/groups/187077145174711	Hopkins County, KY. Discuss Alpha Gal Allergy here in Western Ky. Tell us your stories.
Alpha Gal - Lawrenceburg TN	TN	6	Rebeca Bosheers	https://www.facebook.com/groups/675162567408656	Lawrenceburg, TN
Alpha-gal Support of North Mississippi	MS	2	Lisa Lyon	https://www.facebook.com/groups/335849114008196	North MS.
Alpha gal support Richmond Virginia	VA	8	Sara Bean	https://www.facebook.com/groups/142167415637861/	Richmond, VA

All the information on alphagalinformation.org is provided in good faith, but we, the creators and authors of the Alpha-gal Information website offer no representation or warranty, explicit or implied, of the accuracy, adequacy, validity, reliability, availability, or completeness of any information on this site. Under no circumstances should we have any liability for any loss or damage incurred by you as a result of relying on information provided here. We are not physicians or medical professionals, researchers, or experts of any kind. Information provided in this website may contain errors and should be confirmed by a physician. Information provided here is not medical advice. It should not be relied upon for decisions about diagnosis, treatment, diet, food choice, nutrition, or any other health or medical decisions. For advice about health or medical decisions including, but not limited to, diagnosis, treatment, diet, and health care consult a physician.
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