About Us

 

The Alpha-gal Information Website

The goal of the Alpha-gal Information website is to advance understanding of alpha-gal syndrome by developing educational resources and tools for our community, friends, families, healthcare providers, the media, and other key audiences.

We are not physicians or medical professionals. We cannot provide medical advice, nor do we seek to.

Alpha-gal Information is a project of the Alpha-gal Alliance, a 501(c)(3) nonprofit that promotes the health and well-being of people with alpha-gal syndrome by systematically addressing the unmet needs of the alpha-gal syndrome community through direct action, institutional capacity building, and coordinated inter-institutional and cross-sector initiatives.

We volunteer our time to creat and maintain this website. We do not profit or seek to profit from this website. 

Creator

The Alpha-gal Information website was created and is maintained by Sharon Forsyth.

Sharon is the Executive Director of the Alpha-gal Alliance and the Alpha-gal Alliance Action Fund, and the creator of the Alpha-gal Information website, the most comprehensive resource on alpha-gal syndrome.

She served as Director of Conservation International’s Africa Program, President of the Beneficia Foundation, and on the boards of the American Bird Conservancy and Bat Conservation International. Prior to her conservation work, she served as a Peace Corps volunteer in Botswana, where she taught agriculture. She holds a BA in biology and economics.

Sharon contracted AGS while pursuing her lifelong interest in natural history. She lives in Washington, DC with her husband, biologist Adrian Forsyth, who also has AGS.

Contributors to the AGI Website

Significant contributions to the Alpha-gal Information website were also made by:

Lee Ann Kendrick

Technical support

Lee Ann Kendrick lives in Fayetteville, AR, is a mother, and a grandmother of two girls. She is the owner at Lake Designs Associates, a small graphic design and marketing agency, focusing primarily on web development and branding. After years of health issue mysteries, she found reference to alpha-gal after keeping a food diary following allergic episodes, and requested testing in 2017. Lee Ann has a passion for cooking, and has embraced alpha-gal as a challenge to keep finding ways to cook meals that she loves.

Crystal Norton

Editor
Researcher

Crystal Norton resides in Burlington, NC and is a mother to two children and one fur baby. She has a background in psychology and art, and enjoys all things creative and enjoying the beauty of nature. She has had AGS likely since 2004. She highly suspected AGS in 2016 and found the answers to her ailments on the internet as “red meat allergy.” She was not diagnosed until 2017, when doctors did not believe it was a real illness until there were positive test results.

Jennifer Burton, Founder, Alpha Gal Encouragers - NW Arkansas

Researcher, tick-related resources
Original compiler of the Patient Recommended Physicians database

Eric & Jennifer Burton moved to NW Arkansas in 2004. Jennifer is a busy wife, mother & grandmother. She has worked for NorthWest Arkansas Community College for 14 years in the Information Technology Dept as the Admin Analyst to the CIO & manages the college’s annual IT budget.

All her life she’s had a love for cooking, gardening, camping & the outdoors. But in Sept of 2016 Jennifer’s health took a turn for the worse. For the next 6 months she lost time from work suffering with extreme GI pain, chronic fatigue, inflammation, swelling, outbreaks of hives, then anaphylaxis. The doctor was unable to find the cause. Then Jennifer barely survived a 4th anaphylaxis attack on Feb 28, 2017. Several blood tests & doctor’s appointments later, she was told she had become highly allergic to beef, pork & lamb. The final diagnosis – Alpha Gal Syndrome (AGS).

The diagnosis is life altering. For Jennifer it doesn’t just mean stop eating mammal meats, cheese & dairy, which is hard enough – it means researching all other forms of mammal you never thought of. In prescriptions, gelatin capsules, candy, personal care products, makeup. The list is endless and daunting. Jennifer and Eric serve in the Care & Outreach ministries.

Jennifer created emergency medical/contact card and restaurant cards.

Tami McGraw

Tami McGraw
Creator, AGS CafePress Store (defunct)

Tami McGraw lives in beautiful Pittsboro, NC with her husband and youngest son, Michael. She loves gardening, CrossFit and cooking. Her family includes four children and three grandchildren. After years of complex, confusing health problems and multiple incorrect diagnoses, she was finally tested for Alpha Gal at her request. She has been vocal in Alpha Gal awareness for years now, trying to help protect others from acquiring this crazy, life changing allergy.

Melissa Davison Doherty

Original compiler of the Facebook Support Group database

Dori Svardal

Founder of the AGS Emotional Support Team (defunct)

Dori Svardal is a 45-year-old female that lives in Springfield, Missouri. She has been a police dispatcher for 20 years. She enjoys writing, painting, playing with her furbaby and visiting with friends. In 2015, after suffering with an unknown illness for 9 months, she suspected she had Alpha Gal Syndrome through her own research. It was then confirmed through a blood test ordered by a reluctant allergist. She values the many wonderful friendships she’s made, despite the fact that AGS was often the thing that brought many of those friends together.

The Following People Contributed Their Stories for the AGI Website:
Annia Nelson Contreras, Christopher Scott, Bethany Welch, Samantha Gross, Dori Svardal, Annie Mae King, Julie Smith LeSueur, Tracy Gaskins, Crystal Norton, Charlotte Meyer, Claiborne Taylor, and Heather Posey Johnson. 

The Following People Contributed Photos for the AGI Website:
Sharon Forsyth, Melissa Appel, Malin Lundén Schmid, Jai Johnson, and Sandy Wiseman.

Additional Contributors:
Tina N Bryan Decker, Summer Carroll, Beth Diggs, Kelly Dickens-Kinsella, Linda P, Tina Merritt, Julie Smith LeSueur, Rachel McAfee Jones, Annia Contreras, Paul Smith, Astrid Smith, Elizabeth Elmer, Rene Morcom, Mark Morcom, Malin Lundén Schmid, and Chip Doss.

All the information on alphagalinformation.org is provided in good faith, but we, the creators and authors of the Alpha-gal Information website offer no representation or warranty, explicit or  implied, of the accuracy, adequacy, validity, reliability, availability, or completeness of any information on this site. Under no circumstances should we have any liability for any loss or damage incurred by you as a result of relying on information provided here. We are not physicians or medical professionals, researchers, or experts of any kind. Information provided in this website may contain errors and should be confirmed by a physician. Information provided here is not medical advice. It should not be relied upon for decisions about diagnosis, treatment, diet, food choice, nutrition, or any other health or medical decisions. For advice about health or medical decisions including, but not limited to, diagnosis, treatment, diet, and health care consult a physician.
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DISCLAIMER:

 All the information on alphagalinformation.org (“here” “this site”) is provided in good faith, but we, the creators and authors of the alphagalinformation.org website (“we” “us” or “our”) offer no representation or warranty, explicit or  implied, of the accuracy, adequacy, validity, reliability, availability, or completeness of any information on this site. Under no circumstances should we have any liability for any loss or damage incurred by you as a result of relying on information provided here. The user assumes all risk of using information provided here.

We are not physicians or medical professionals, medical or scientific researchers, or experts of any kind. We are laymen with alpha-gal syndrome with no medical or scientific expertise. The information provided by us on alphagalinformation.org  is provided for general informational purposes only. It may contain errors and should be confirmed by a physician. Information provided here is not medical advice and is not a substitute for the advice of a physician or other medical professional. It should not be relied upon for decisions about diagnosis, treatment, diet, food choice, nutrition, or any other health or medical decisions. For advice about making medical and health-related decisions, consult a physician.  

Alphagalinformation.org may contain links to other websites, embedded information from other websites, links to apps, or other sources of information belonging to or originating with third parties. We do not investigate, monitor, or evaluate information provided by external links or embedded third party features for accuracy, adequacy, validity, reliability, availability, or completeness. We do not warrant, endorse, or guarantee the accuracy of such information. We will not be a party to or in any way responsible for monitoring any transaction between you and any third-party provider of products, services, or information. Under no circumstances should we have any liability for any loss or damage incurred by you as a result of relying on third party information provided here. The user assumes all risk of using information provided here.

No mention of any product or service on this website constitutes an endorsement. We do not endorse any products or services mentioned here. We cannot and do not guarantee that any product or services mentioned here will not harm you, anybody with alpha-gal syndrome, or any other person. We will not be a party to or in any way responsible for monitoring any transaction between you and any third-party provider of products or services. Under no circumstances should we have any liability for any loss or damage incurred by you as a result of the use of third-party products or services. The user assumes all risk of using products and services mentioned or named on alphagalinformation.org or any third party mentioned or connected to through external links or embedded features.

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