Emotional Support for People with Alpha-gal Syndrome
Alpha-gal Emotional Support Team–a Project of Dori Svardal
For those of us that are newly diagnosed with Alpha-gal Syndrome, it can be horribly daunting. All those labels! What can I eat? What can’t I eat? What will it do to me? Why are people treating me like I’m crazy? Is there a doctor that knows more about this? There are so many overwhelming new changes, and we know it’s hard.
If you’re having an allergic reaction, you need to contact 911 immediately. But anyone who wants to talk to someone local about feeling overwhelmed, interactions with other people, how to protect themselves from cross-contaminations or any gripes or questions, can contact one of our Emotional Support Team. If you can’t find someone in your area, feel free to shoot us an email at email@example.com, and we can try to help you find someone. This is an overwhelming, crazy, frightening rollercoaster ride we’re all on. The more we can educate and support ourselves and others, the better we can all be.
Call or Whatsapp +27787739956
DISTRICT OF COLUMBIA
Rachel McAfee Jones
NEW HAMPSHIRE/NEW ENGLAND
Long Island-Suffolk County
AGS Facebook Support Groups
Created by Melissa Davison Doherty and Jennifer Burton, maintained by Sharon Forsyth
You are not alone! Thousands of us have alpha-gal syndrome! We gather in Facebook groups to support each other and help each other find doctors and dentists, foods we can eat, and personal care products we can use. Since so little is known about our illness, we talk about our symptoms and how we manage them, how to talk to doctors about AGS, and the medicines, vaccines, and other medical issues we need to discuss with them. We share our stories, our disappointments, and our successes. Come join us!
Inclusion of groups on this list does not suggest endorsement of information shared in them. Beware of misinformation in Facebook groups, often aggressively promoted by people who share research papers in order to lend credibility to their posts, but who rarely read them or are capable of understanding them. Note that some groups allow promotion of unvalidated medical treatments and other dangerous misinformation. Take what you read in Facebook groups with a grain of salt!
Alpha-gal Syndrome Facebook Information and Support Groups
All the information on alphagalinformation.org is provided in good faith, but we, the creators and authors of the Alpha-gal Information website offer no representation or warranty, explicit or implied, of the accuracy, adequacy, validity, reliability, availability, or completeness of any information on this site. Under no circumstances should we have any liability for any loss or damage incurred by you as a result of relying on information provided here. We are not physicians or medical professionals, researchers, or experts of any kind. Information provided in this website may contain errors and should be confirmed by a physician. Information provided here is not medical advice. It should not be relied upon for decisions about diagnosis, treatment, diet, food choice, nutrition, or any other health or medical decisions. For advice about health or medical decisions including, but not limited to, diagnosis, treatment, diet, and health care consult a physician.
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